Rare Disease Patient Care Coordinator

Rare Disease Patient Care Coordinator role supporting patients with rare diseases, navigating insurance benefits, prior authorizations, and financial assistance programs. Opportunity to make a meaningful impact with a mission-driven, patient-focused team.

Requirements

• Conduct detailed rare disease insurance benefit investigations to determine coverage, copays, and patient responsibility
• Process and adjudicate prescription claims, resolving rejections and coverage issues
• Prepare and submit prior authorizations and appeals, following up to ensure timely approvals
• Partner with patients, providers, and payers to overcome access barriers
• Identify and coordinate financial assistance options (copay cards, foundations, PAPs)
• Communicate claim status updates clearly to patients and healthcare teams
• Maintain accurate documentation of benefits, interactions, and resolutions
• Stay current on insurance policies, formularies, and reimbursement requirements
• Collaborate with pharmacists, patient care teams, and internal stakeholders to ensure seamless service

Benefits

• Health benefits package
• 401k plan
• Professional development